Research Study – Involving Parents and Staff in learning from Child Deaths

We are delighted to be part of a new research project in how we can involve parents and staff in the child death review which will help palliative care teams learn from parents after a child dies.  This learning will help the care and treatment for future children as well as much needed support for bereaved parents.

After any child dies, the doctors, nurses and other staff looking after them have a meeting to discuss what happened to try and learn from deaths to improve care and help families in the future. Information from parents is very important for this meeting, as they knew their child best, and will have been involved in all their treatment and care throughout their life. Parents may also have questions they want answered about their child’s illness, treatment, or death.

This study wants to find out about the most helpful and supportive ways of involving parents in learning from child deaths and sharing information with them about the process.

We are inviting parents of children, aged between one month and 18 years, who died after a stay in hospital, hospice or at home with palliative care, anywhere in England, during 2021 to take part.

We would like to talk to bereaved parents whose children died (aged 1 month to 18 years) in hospital, hospice or palliative care at home from 2021 to help with a research project.